Made to write apology letters multiple times..

I was diagnosed with Alzheimer’s disease at age 51 in 2011. I worked as a water meter reader, but at some point I couldn’t remember the location of the meters I had memorized, and I ended up forgetting my appointment time and couldn’t go. I caused lots of troubles and had to write apology letters many times. It was shocking. I blamed myself for becoming unable to do things and felt depressed.

Seeking medical care without certainty and encountering a trustworthy physician

Because my mother also had dementia, I thought perhaps something was wrong, so I went to the hospital. There, the doctor explained to me kindly, saying, “It’s not your fault, Mr. Kondo. It’s caused by a brain illness.” His words saved me. I felt relieved, thinking “It’s not my fault.”
The doctor also advised me about the job I was worried about, saying that “It’s better to keep working as long as you can.” I continued working until my contract ended, and I left once it expired. Losing my job made me feel detached from society and I have no place to belong to anymore.

Connected to a community upon a Doctor’s advice

At that time, I heard from the doctor that there is a support group for early-onset dementia, and I attended “Ayumi no Kai,” I met people who are experiencing the same feelings as I am, and I thought this was my place I belonged.
Eventually, I started going to a day service center for people with early-onset dementia. I am enjoying activities such as talking with everyone, eating meals, and going out. Additionally, I was invited to join the early-onset dementia support group “Genki Kai”, which helped my make more friends.

Making friends, having fun, being myself

I volunteer to help out at a dementia cafe. I also attend the gatherings at the Ikki Support Center*. Becoming an Aichi Prefecture Dementia Hope Ambassador, I have been engaging in dementia awareness activities and sharing the thoughts and feelings as a person living with dementia at various places.
I am currently making friends, living happily, and being myself. I want to continue doing what I can now to create a community where people feel safe even if they develop dementia.

*Ikki Support Center: A regional comprehensive support center in Nagoya City

Written by Youko Kondo
Translated by Satoshi Nakano